About

I am the mother of two boys who were recently diagnosed with Dystonia, a rare neurological movement disorder. It causes twisting and contractions of any voluntary muscle in the body. It can be anywhere from painless and annoying to excruciatingly painful and debilitating, depending on the day and the muscle in question.
During the diagnostic process we realized Dystonia was also the explanation for my husband’s constant discomfort, pain and inability to sleep.

This is my story. I am the only member of my household not inflicted with this neurological condition. This is my journey through all the joys and highs of motherhood, and all the agony of watching everybody that you love most in life hurt. It’s a bit of a bumpy ride, but it’s a great ride, and one I wouldn’t change for the world!

I am a contributor to ScaryMommy, The Mighty, BLUNTmoms, The Dystonia Medical Research Foundation, Kidsopt, UnderBlog, and Central Vally Medical.

Follow me on twitter @raisingdystonia
And Facebook https://www.facebook.com/pages/Raising-Dystonia/1486721551593886

2 thoughts on “About

  1. I just read two of your posts on The Mighty. I have Dystonia, too!!!!
    Sorry I don’t know what else to say (right now)…I’m just so excited because as I was reading about your boys, I thought, this sounds like my Dystonia. It’s just good to read that I’m not alone. So, thank you!

    Like

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