While every story I write is special to me, I’m really fond of these 6, particularly together. To me they describe so many of the emotions I feel that I cannot verbally articulate. As a series they capture the many different aspects of my life raising kids with Dystonia. They paint a broad picture of the intense extremes that chronic illness creates.
The Four Letter Word http://wp.me/p4ZlgH-m via @RaisingDystonia. This is a story of triumph. Its about achievement in the face of adversity, and the power of persistence. This story replays one of my favourite memories of my oldest son, because it was the first time he truly triumphed and felt success. It’s about the day he wrote his name for the first time.
Blueberries http://wp.me/p4ZlgH-Z via @RaisingDystonia. This is a story about how an old blueberry stain caused a flood of conflicting emotions. The source of the conflict lies in how the stain was acquired two years earlier, and what it meant about my little boys’ health. I like this one because it exemplifies the complexity that can be found in simple things.
Stop and Smell the Flowers http://wp.me/p4ZlgH-11 via @RaisingDystonia. This is one of my favourites. It is about how an evening walk resulted in my son, both literally and metaphorically making me stop and smell the flowers, and what he inadvertently taught me about life in the process.
Soldier http://wp.me/s4ZlgH-soldier via @RaisingDystonia. This article I wrote at 4AM while lying next to my son while he was in the hospital. It was written totally stream of consciousness and is all about he resolve a parent has when caring for a sick child.
How I Came To Love Winter http://wp.me/p4ZlgH-1x via @RaisingDystonia. This one is about joy, and how it is infectious. It’s a story of how my son’s passion changed the way I view something I spent my whole life disliking.
Painful Please http://wp.me/p4ZlgH-X via @RaisingDystonia. This article is an example of how Dystonia can affect sleep. It is a story of an episode my younger son had and the sadness and helplessness parents feel when they can’t help their suffering child.